Thursday, July 03, 2008

Interesting Book Review Site

Living Well with Migraine Disease and Headaches: What Your Doctor Doesn't Tell You...That You Need to Know (Living Well) Living Well with Migraine Disease and Headaches: What Your Doctor Doesn't Tell You...That You Need to Know by Teri Robert


My review


rating: 5 of 5 stars
The most helpful migraine and headache book to date. Ms. Robert tells it like it is and provides more information than any doctor has time to provide. Based on solid science as well as personal experience -- both her own and that of case studies.



Offers not only information, but hope and inspiration.


View all my reviews.

Wednesday, May 14, 2008

Headache and Migraine Disease Blog Carnival for May


Diana Lee has posted May's Headaches and Migraine Disease Blog Carnival on Somebody Heal Me. This month -- Migraines & Exercise: How do you stay active?

Generally speaking, a blog carnival is a collection of links to a variety of a blogs on a central topic. The Headache & Migraine Disease Blog Carnival has been created to provide both headache and migraine disease patients and people who blog about headache disorders with unique opportunities to share ideas on topics of particular interest and importance to us. Visit the link to this month's carnival for a collection of informative entries on how other Migraineurs fit exercise into their lives.

Sunday, May 04, 2008

Migraine - 2008 Migraine and Headache Poetry Contest Winners!


Each year, writer and patient advocate Teri Robert conducts the Putting Our Heads Together Poetry Contest to bring together people with AND without Migraine disease and headaches to share our thoughts and expressions. This contest is held in April, National Poetry Month.

I just read this year's winning poems and many of the other poems entered. Wow! The poems submitted to this contest get better and better every year. I'm glad I'm not one of the judges. There's just no way I could choose!

When you have a bit of time, go read the wonderful poetry! You won't be disappointed!

Thursday, April 24, 2008

Spring. Love it? Hate it? Migraines love it!

What a horrendous couple of weeks! In so many ways, I love spring with it's cherry blossoms, birds returning, flowers blooming! But, spring also seems to bring me more Migraines than any other time of year with wildly fluctuating temperatures and weather fronts coming through. UGH!

Of course, the increase in Migraines is at least partly my own fault. Once warmer weather arrives, I tend to curl up on my porch swing and sit there late into the night. That means going to bed later, getting less sleep. So, add that to the mercurial weather, and I'm doomed.

I can't decide if I love or hate spring. The one thing I'm sure of? Migraines love it!

Namaste,
Abi

Tuesday, April 15, 2008

Migraine Poetry - Express Yourself and Raise Awareness

Author and Patient Advocate Teri Robert knows the pain migraine sufferers face each day – she’s been experiencing headaches and migraine attacks herself since childhood. Finding writing therapeutic and wanting to further help those in the migraine community, Robert, in conjunction with The HealthCentral Network (www.HealthCentral.com), are hosting the “Putting Our Heads Together” Poetry Contest 2008.

Now in its seventh year, the contest encourages sufferers to find creative ways to express their pain. “Putting Our Heads Together” is free and will be published on HealthCentral’s MyMigraineConnection.com and Roberts’ HelpForHeadaches.com.

Entries will be judged by MAGNUM, the National Migraine Association (www.migraines.org) and will be collected until April 21. Winners will be announced on April 30, in recognition of National Poetry Month. “This contest started in 2001, and the work submitted has been amazing. Writing can be very therapeutic, as can reading what others have written,” said Robert, who currently educates and supports patients as Lead Expert for the MyMigraineConnection.com community. “Migraine disease and headaches can impact our lives more than many people could ever imagine.” “People coping with migraine disease continue to reach out to one another, forming incredibly supportive communities online,” said Chris Schroeder, CEO and President of The HealthCentral Network. “It’s an honor to provide the forum where users can creatively tell their stories and inspire others.”

Migraine disease affects nearly 36 million people in the United States alone, and at least 80% of the world's population will be affected by tension-type headaches at some time in their lives. Headache disorders cause more than 1 percent of all disability and 9 percent of all lost labor in the U.S. every year.

More information and the online entry instructions can be found on MyMigraineConnection at www.healthcentral.com/migraine/poetry-contest.html.

Why not join in the fun and enter? The deadline for entries is Monday, April 21.

Shalom,
Abi

Monday, April 14, 2008

April Headache Blog Carnival - Strategies for Coping with Migraines


Generally speaking, a blog carnival is a collection of links to a variety of a blogs on a central topic. The Headache & Migraine Disease Blog Carnival has been created to provide both headache and migraine disease patients and people who blog about headache disorders with unique opportunities to share ideas on topics of particular interest and importance to us.

Visit this month's carnival for a collection of informative entries on basic strategies for coping with migraines and headaches.

Friday, April 04, 2008

Migraine Research - Please email your Senator TODAY!

We need and deserve better treatments, but we're unlikely to get them until the NIH increases the funding for basic Migraine and headache research.

Each of us CAN make a difference. Please read the letter below and follow the link to email your Senators NOW.

Thanks!

Shalom,
Abi

TAKE ACTION!

Please Email Your Senator Today!

Our efforts last month to urge members of the US House of Representatives to support increases in NIH funding for research on headache disorders were highly successful. Twelve Representatives signed the Obey/Walsh letter. This is an outstanding result for the first mobilization of our numbers, and we are optimistic that it will be enough to have our message appended to the House appropriations bill.

It is now time to contact your US Senators for the same purpose. Unfortunately our window of opportunity is only narrowly open. The letter with Senators' signatures must be submitted by today, April 4th.

  1. Please take just 5 minutes RIGHT NOW to go directly to http://capwiz.com/headacheadvocacy/issues/alert/?alertid=11231066&PROCESS=Take+Action and send your message to your two US Senators
  2. Please forward this email right away to anyone else concerned about the inadequate state of care for patients with headache disorders.

Only with increased research will new effective treatments for headache disorders become available. And only with your help will such research activities increase to levels appropriate to the huge scale of this problem. The larger our voice, the greater will be our impact.

Thanks again for your efforts.

Robert Shapiro, MD, PhD
William Young, MD,
Teri Robert, PhD
Brad Klein, MD, MBA


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Thursday, March 13, 2008

Migraine Treatments: Time to get off our behinds!

Here's a sad fact for you -- There are NO medications available that were developed for Migraine prevention. NONE. Everything we have in our arsenal was developed for other conditions. Then Migraineurs using them for those conditions noticed that they were having fewer Migraines. All the preventive medications we have are what Teri Robert calls "hand-me-down" drugs.

How about another sad fact? Two days ago, the Alliance for Headache Disorders Advocacy posted an alert to their web site asking Migraineurs and other headache disorder patients, their friends, family, coworkers, etc., to email their members of the House about increased NIH funding for Migraine and headache research. The set up they have makes it quick and simple to send that email. It takes less than five minutes. I just emailed Teri, and was shocked by how few people have responded to that alert.

I read several Migraine forums, and am always saddened by the number of people who are desperately searching for effective preventive treatment. Lives are being disrupted and destroyed by this disease.

So, here's my question for those of you who are in that position or care about someone who is -- IF YOU HAVEN'T GONE TO THE AHDA SITE AND SENT THAT EMAIL, WHY NOT?

This is something we can DO that can make things better for us. It only takes a few minutes. You don't have to look up your representative. That's done for us. Even the introduction and closing of the email are done for us. We don't have to leave our homes or even pay for a postage stamp.

Here's my take on this situation. If you don't take a few minutes to go to the AHDA site and email your representative, they you no longer have the right to complain about the lack of available treatments. We can't just sit back and count on other people doing this for us.

It's one email. It's five minutes out of our day. It's time to get off our behinds and DO something!

From a blog entry on MyMigraine Connection:
PLEASE, go to www.AllianceForHeadacheAdvocacy.org NOW. Click the "What YOU Can Do" link in the left column. You will go to our Alert Center. There is a box with our Featured Alert. Simply click the red "Take Action" button in the Featured Alert box. That will take you to a letter that's ready for you to add what you want to say about this issue, fill in your name and address, and have your email sent directly to your Representative. It is urgent that you do this NOW because the House is setting 2009 funding appropriations in just a few days.

Please go to MyMigraineConnection, read that blog entry, and take action!

To read the rest of that blog entry, please click here.

Namaste,
Abi