Sunday, August 08, 2010

Migraine and Disability, the Best Post I've Seen!

Kudos to Migraine specialist and AHDA advocate Bill Young who wrote the best blog post I've ever seen on the topic of Migraine and disability. Here's the first paragraph:
"In order to bring new treatments to people with severe migraine we have to be able to measure the disability and impact of migraine. I am a physician who cares for and about people with severe headaches, but I have encountered a problem communicating with other doctors, scientists, and with my patients about how their headaches impact their lives. In order to determine this, I ask questions such as, “What effect does migraine have on your life?” or, “How do your headaches make your life different than it otherwise would be?”. The answers I get, often accompanied by tears, vary from the people who insist on focusing on the smallest effect–what one headache feels like–to those who give me a real feel for the big picture."
You have to take the time to read the rest of this blog post, Disability, Impact and Migraine.

Thank you, Dr. Young, for all your hard work on our behalf.

Namasté
Abi

6 comments:

Andy said...

Really a good post by Bill. The best ever? How do we measure that ;)

True though, that we need better means of measurement for our disease.

Thanks Abi for helping me find this article.

Melanie said...

Hi Abi, just found your blog as I'm following bread crumbs and links from other migraine blogs. I've just started recently blogging myself as a way to help me deal with my chronic migraine pain.

You can visit me at:

www.heldhostagebymybrain.blogspot.com

I'm looking forward to reading your posts.

Jamie Valendy said...

I have gifted you with the One Lovely Blog Award. Check it out at http://chronicmigrainewarrior.blogspot.com.

The Primrose Lane said...

I so enjoy your blog - though my is not explicitly about migraines, they are definitely in there!!!

http://mimisprimroselane.blogspot.com/

meganconser said...

Abi- I just ran accross your blog- I am going to look into this post you linked to. It is very interesting as communicating about and describing a headache is sometimes just too big and overwhelming to describe. Isn't it nice to know someone realizes that? -Megan

My headache blog: momhasaheadache.blogspot.com/

Emily said...

What a great post! When I was diagnosed four years ago, I had no idea how migraine would change my life... and career. Thanks for sharing! Emily

http://thatmword.tumblr.com
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