Wednesday, July 11, 2007

Wikipedia has really gone too far!

Dear Friends,

I would seldom even consider doing something like this, but I've been driven to it. I'm asking that we ALL stop using Wikipedia. You may think I'm exaggerating, but they are setting back Migraine DISEASE advocacy by years in the minds of anyone who takes them seriously.

Somewhere along the line, some misguided soul decided that the experts who had worked on the Migraine page and added many, many valid references were wrong; that Migraine is a disorder, NOT a disease. For proof, they went to the NINDS site, which most of us realize is always years behind current science. They also went to the NHF site. Now, on the NHF site, there are places were Migraine is referred to as a disease and some where it's referred to as a disorder. The "discussion" went into their dispute resolution process, and they will hear no more discussion on it, even from some of the world's leading experts in the field.

My blunt and honest opinion -- what started out as a good idea has turned into a site that sucks. There are all these "editors" who don't know their butt from a hole in the ground who think they're experts because they know how to go read a couple of web sites. They don't care how old the data is that they find; they only care about winning their point.

So, let's just stay away from Wikipedia. There are plenty of good sites. Wikipedia is no longer among them, and I see little hope for their return to sense and good information.

Saturday, July 07, 2007

Whining about Migraines -- Here's some honesty!

It can be really hard to know what to say to someone suffering with a Migraine or headache. You want to be kind, sympathetic, helpful. I would imagine that if you're a professional in the field -- educating, supporting, and advocating for Migraineurs -- you have to walk a fine line. You'd want to do all that being kind, sympathetic, but you might not know how to handle (drum roll, please)... the whiners and drama queens! OK. I've said it, the "w" word. Some of us can be whiners. If you frequent message boards, you know the type. About once a week (if you're lucky, it's ONLY once a week), they post virtually the same "vent" they posted the week before. Some of them will even ask for advice. The problem is that they never take anyone's advice, and they never get off their butts and do anything about their situation.

I don't think I've used this word to describe Teri Robert before, but she's brave. Yesterday, she wrote a blog entry entitled "Yes, Migraines and headaches are awful, but don't be a whiner or drama queen!" Damn! I almost spit coffee all over my monitor when I read it. She was more diplomatic about it than I could have been, but that's Teri. If anyone knows what a Migraineur goes faces, she does. If anyone understands the dangers of falling into whining, she does.

What Teri did in her blog that maybe nobody else knows how to do is to explain the difference between "venting" and "whining." She even explains how to vent without whining.

Way to go, Teri, and thanks!