tag:blogger.com,1999:blog-341664072012-01-22T17:54:10.990-05:00wandering the vast reaches of the internet to discover the truth about Migraine disease and expose the misconceptionsAbigailhttp://www.blogger.com/profile/13149095861584546967noreply@blogger.comBlogger611100tag:blogger.com,1999:blog-34166407.post-59674421001246485102012-01-22T17:54:00.000-05:002012-01-22T17:54:11.006-05:00

Went to Tweet some of my favorite Migraine links today, but Twitter has been "over capacity" for the last half hour. Now I understand that it's Sunday, and I understand that we don't pay for unsing Twitter, but it is monetized. So, what's the deal? This isn't an isolated incident. TIme for Twitter to invest in more server space or bandwidth or whatever it is they need to invest in to solve this

Abigailhttp://www.blogger.com/profile/13149095861584546967noreply@blogger.com0tag:blogger.com,1999:blog-34166407.post-70486823870862475772012-01-15T11:42:00.000-05:002012-01-15T18:27:41.010-05:00

Long time, no blog, fellow Migraineurs! Wanted to pop in to remind everyone that the Alliance for Headache Disorders Advocacy is busy at work trying to get Congress to hold the very first Congressional hearings about Migraine disease and other headache disorders. As with their other initiatives, it only takes a very short time to sign this petition, and it's super easy. You just follow the

Abigailhttp://www.blogger.com/profile/13149095861584546967noreply@blogger.com1tag:blogger.com,1999:blog-34166407.post-28444318561685113862010-08-08T16:02:00.003-04:002010-08-08T16:09:58.698-04:00

Kudos to Migraine specialist and AHDA advocate Bill Young who wrote the best blog post I've ever seen on the topic of Migraine and disability. Here's the first paragraph:"In order to bring new treatments to people with severe migraine we have to be able to measure the disability and impact of migraine. I am a physician who cares for and about people with severe headaches, but I have encountered

Abigailhttp://www.blogger.com/profile/13149095861584546967noreply@blogger.com6tag:blogger.com,1999:blog-34166407.post-68248170641078779702010-07-02T21:05:00.002-04:002010-07-02T21:08:58.407-04:00

Well, Arabella of the blog Migraine Truth has found an other real gem. I'm not going to write anything about this blog post she found. She has spoken quite well enough for me.Please, go read Migraines are Curable - Here We Go Again!Great job, Arabella. Thank you!Namasté,Abi

Abigailhttp://www.blogger.com/profile/13149095861584546967noreply@blogger.com0tag:blogger.com,1999:blog-34166407.post-33622607501373611582010-04-19T11:43:00.002-04:002010-08-08T16:02:21.808-04:00

If you've read this blog before, you know that I admire Teri Robert a great deal. Teri is the author of Living Well With Migraine Disease and Headaches, a health writer, and a patient advocate in the field of Migraine and other headache disorders. If I were younger, I'd hope to grow up to be like Teri. As it is, I hope my daughter grows up to be like Teri. I could go on about why I admire her,

Abigailhttp://www.blogger.com/profile/13149095861584546967noreply@blogger.com10tag:blogger.com,1999:blog-34166407.post-14140373190819786732010-02-15T12:46:00.002-05:002010-02-15T13:13:16.560-05:00

By now, I hope everyone who reads this blog knows that I care deeply about others with Migraines and their problems with getting treatment. Still, I'm seeing a trend that really bugs me.What I'm seeing is Migraineurs who talk and talk about needing better care, but expect everything to be easy and essentially just handed to them. Let me explain. There are two main issues I'm seeing discussed:

Abigailhttp://www.blogger.com/profile/13149095861584546967noreply@blogger.com4tag:blogger.com,1999:blog-34166407.post-31324942436138012622009-12-20T16:57:00.003-05:002009-12-20T23:30:14.529-05:00

Hello, Fellow Migraineurs!The December edition of the Migraine Disease and Headache Blog Carnival is up, and it's a great one!This month's theme is "Advice on and experiences with holiday season stress. I hope you'll take some time to go visit the carnival and read the posts.The carnival this month is hosted by Teri Robert on MyMigraineConnection.com. To visit this month's carnival, JUST CLICK

Abigailhttp://www.blogger.com/profile/13149095861584546967noreply@blogger.com4tag:blogger.com,1999:blog-34166407.post-71370475707662560422009-10-14T10:43:00.003-04:002009-10-14T10:48:20.259-04:00

The Headache & Migraine Disease Blog Carnival has been created to provide both headache patients and people who blog about headaches with opportunities to share ideas on topics of particular interest and importance to us.The theme of the October carnival is Alternative therapies - your experiences (good or bad), thoughts about trying them or any other take on the subject.This month's carnival has

Abigailhttp://www.blogger.com/profile/13149095861584546967noreply@blogger.com1tag:blogger.com,1999:blog-34166407.post-67791904418439269202009-09-26T13:00:00.004-04:002009-09-26T13:17:05.964-04:00

Namasté, my dear readers!Although my own Migraines and daily life haven't left me much time for blogging recently, I've been thinking about everyone.In lieu of trying to put together the required brain cells to blog today myself, I thought it would be a nice change of pace to share with you some of the blogs I've enjoyed lately. If you missed them, this will give you another chance to read some

Abigailhttp://www.blogger.com/profile/13149095861584546967noreply@blogger.com1tag:blogger.com,1999:blog-34166407.post-61293170170637855012009-09-15T18:05:00.005-04:002009-09-15T22:57:08.565-04:00

Last week was a great one for all of us with Migraine disease. We've been wishing for ages for a Migraineur who is very visible to the public to take up our cause, and it has happened at last.Cindy McCain, wife of Senator John McCain, came forward last week. She not only shared about her own situation with Migraine, she came forward to advocate for all of us.Author and patient advocate was there

Abigailhttp://www.blogger.com/profile/13149095861584546967noreply@blogger.com0tag:blogger.com,1999:blog-34166407.post-57467290421612293022009-02-07T14:03:00.005-05:002009-02-07T14:26:48.515-05:00

Hello! I know I've been remiss about posting, but family and personal matters have had me busy, busy, busy.Anyway, this is to important to miss...One of the biggest hurdles we face regarding Migraine treatment is the lack of solid research into the cause of Migraines and just what happens when we have a Migraine. Although there's been good progress, it's nowhere near that of some other diseases

Abigailhttp://www.blogger.com/profile/13149095861584546967noreply@blogger.com3tag:blogger.com,1999:blog-34166407.post-50345980427894780522009-01-02T07:14:00.003-05:002009-01-02T07:21:35.653-05:00

It seems that my all-time favorite podcast is back! Some time ago, Teri Robert started MigraineCast, a podcast chock full of great information and tips about Migraines and headaches.It's been a while since the last podcast, and when I emailed Teri about it a while back, she apologized, saying that she'd been so busy with all of her work that MigraineCast had taken a back seat for a while. She

Abigailhttp://www.blogger.com/profile/13149095861584546967noreply@blogger.com5tag:blogger.com,1999:blog-34166407.post-22440114813257352422008-11-21T10:53:00.003-05:002008-11-21T11:00:07.102-05:00

I've been a bit AWOL recently. Dealing with my own family and health issues. While I wasn't around, a new Migraine blogger has appeared on the scene. Arabella started a new blog she named Migraine Truth, she says "because I'm tired of misconceptions, misunderstandings and outright lies." Wow.Arabella is taking on some of the sites and blogs many Migraine bloggers don't or won't. Why not? I can't

Abigailhttp://www.blogger.com/profile/13149095861584546967noreply@blogger.com3tag:blogger.com,1999:blog-34166407.post-81112685764213041472008-11-11T23:21:00.004-05:002008-11-11T23:46:09.377-05:00

One of the first really great Migraine and headache web sites I found when I turned to the internet for information several years ago was About.com's About Headaches and Migraines. At that time, the "guide" on the site was Teri Robert. When she left the site in January of 2007, it was a sad time for me. I'd followed her work for several years by then; had read her stupendous book, "Living Well

Abigailhttp://www.blogger.com/profile/13149095861584546967noreply@blogger.com5tag:blogger.com,1999:blog-34166407.post-75592811498046544912008-08-04T11:21:00.007-04:002008-08-04T11:49:16.182-04:00

OK, I'm seldom at a loss for words, but I just saw a book that leaves me feeling inadequate to express my thoughts about it in words. inspiring dynamic glorious

Abigailhttp://www.blogger.com/profile/13149095861584546967noreply@blogger.com6tag:blogger.com,1999:blog-34166407.post-34723611690673749762008-07-22T12:55:00.004-04:002008-07-22T13:49:12.321-04:00

I find myself exceedingly sad today. Last week, I received an email from a PR firm representing one of our major headache and Migraine disease nonprofit organizations. The email asked me to share information from a recent survey done by the nonprofit organization.My mood went up at first -- Yes! More good information to share. Then my mood plummeted as I continued. What? This MAJOR organization,

Abigailhttp://www.blogger.com/profile/13149095861584546967noreply@blogger.com6tag:blogger.com,1999:blog-34166407.post-39441692951550562732008-07-03T14:08:00.001-04:002008-07-03T14:10:19.977-04:00

Living Well with Migraine Disease and Headaches: What Your Doctor Doesn't Tell You...That You Need to Know by Teri Robert My review rating: 5 of 5 starsThe most helpful migraine and headache book to date. Ms. Robert tells it like it is and provides more information than any doctor has time to provide. Based on solid science as well as personal experience -- both her own and that of case

Abigailhttp://www.blogger.com/profile/13149095861584546967noreply@blogger.com1tag:blogger.com,1999:blog-34166407.post-3254132181012823912008-05-14T02:45:00.003-04:002008-05-14T02:50:44.903-04:00

Diana Lee has posted May's Headaches and Migraine Disease Blog Carnival on Somebody Heal Me. This month -- Migraines & Exercise: How do you stay active?Generally speaking, a blog carnival is a collection of links to a variety of a blogs on a central topic. The Headache & Migraine Disease Blog Carnival has been created to provide both headache and migraine disease patients and people who blog

Abigailhttp://www.blogger.com/profile/13149095861584546967noreply@blogger.com1tag:blogger.com,1999:blog-34166407.post-6478933149206480682008-05-04T02:58:00.003-04:002008-05-04T03:05:32.892-04:00

Each year, writer and patient advocate Teri Robert conducts the Putting Our Heads Together Poetry Contest to bring together people with AND without Migraine disease and headaches to share our thoughts and expressions. This contest is held in April, National Poetry Month.I just read this year's winning poems and many of the other poems entered. Wow! The poems submitted to this contest get

Abigailhttp://www.blogger.com/profile/13149095861584546967noreply@blogger.com0tag:blogger.com,1999:blog-34166407.post-33944745687485434502008-04-24T17:23:00.004-04:002008-04-24T17:29:25.714-04:00

What a horrendous couple of weeks! In so many ways, I love spring with it's cherry blossoms, birds returning, flowers blooming! But, spring also seems to bring me more Migraines than any other time of year with wildly fluctuating temperatures and weather fronts coming through. UGH!Of course, the increase in Migraines is at least partly my own fault. Once warmer weather arrives, I tend to curl up

Abigailhttp://www.blogger.com/profile/13149095861584546967noreply@blogger.com6tag:blogger.com,1999:blog-34166407.post-20746374939545717502008-04-15T14:08:00.003-04:002008-04-15T14:17:25.516-04:00

Author and Patient Advocate Teri Robert knows the pain migraine sufferers face each day – she’s been experiencing headaches and migraine attacks herself since childhood. Finding writing therapeutic and wanting to further help those in the migraine community, Robert, in conjunction with The HealthCentral Network (www.HealthCentral.com), are hosting the “Putting Our Heads Together” Poetry Contest

Abigailhttp://www.blogger.com/profile/13149095861584546967noreply@blogger.com0tag:blogger.com,1999:blog-34166407.post-27208091164499318312008-04-14T14:56:00.002-04:002008-04-14T15:00:57.341-04:00

Generally speaking, a blog carnival is a collection of links to a variety of a blogs on a central topic. The Headache & Migraine Disease Blog Carnival has been created to provide both headache and migraine disease patients and people who blog about headache disorders with unique opportunities to share ideas on topics of particular interest and importance to us.Visit this month's carnival for

Abigailhttp://www.blogger.com/profile/13149095861584546967noreply@blogger.com1tag:blogger.com,1999:blog-34166407.post-62522937231801233222008-04-04T15:49:00.002-04:002008-04-04T15:52:34.730-04:00

We need and deserve better treatments, but we're unlikely to get them until the NIH increases the funding for basic Migraine and headache research.Each of us CAN make a difference. Please read the letter below and follow the link to email your Senators NOW.Thanks!Shalom,Abi Please Email Your Senator Today! Our efforts last month to urge members of the US House of Representatives to

Abigailhttp://www.blogger.com/profile/13149095861584546967noreply@blogger.com0tag:blogger.com,1999:blog-34166407.post-79861260014940174162008-03-13T12:29:00.003-04:002008-03-13T12:59:03.629-04:00

Here's a sad fact for you -- There are NO medications available that were developed for Migraine prevention. NONE. Everything we have in our arsenal was developed for other conditions. Then Migraineurs using them for those conditions noticed that they were having fewer Migraines. All the preventive medications we have are what Teri Robert calls "hand-me-down" drugs.How about another sad fact? Two

Abigailhttp://www.blogger.com/profile/13149095861584546967noreply@blogger.com6tag:blogger.com,1999:blog-34166407.post-37867029338412988232008-03-11T09:49:00.005-04:002008-03-11T09:57:45.415-04:00

Diana Lee at Somebody Heal Me has done us all a great service by establishing a monthly headache and Migraine disease blog carnival. This month, it's being hosted by Teri Robert at MyMigraineConnection.Generally speaking, a blog carnival is a collection of links to a variety of a blogs on a central topic. The Headache & Migraine Disease Blog Carnival has been created to provide both headache and

Abigailhttp://www.blogger.com/profile/13149095861584546967noreply@blogger.com0tag:blogger.com,1999:blog-34166407.post-44630781315467799912008-03-06T14:08:00.004-05:002008-03-06T14:21:55.086-05:00

Last month, the NY Times started a new blog in their Opinion section, "Migraine, Perspectives on a Headache."The blogging world seems to have gone wild talking about this blog, linking to it, praising it. What the hell? Yes, it's wonderful to have more attention paid to Migraine. This blog MAY help raise awareness. Still, I have some issues with it and the response to it:The subtitle, "

Abigailhttp://www.blogger.com/profile/13149095861584546967noreply@blogger.com8tag:blogger.com,1999:blog-34166407.post-82772375726268784202007-12-21T11:46:00.000-05:002007-12-21T11:52:37.773-05:00

I definitely think we all need and deserve better Migraine treatments. For prevention, we do have many medications to try, but did you know that not a single one of them was actually developed for Migraine? No, not one. Why? One reason is that there needs to be far more research into the exact cause of Migraine and what happens in the brain during a Migraine attack. That kind of research is the

Abigailhttp://www.blogger.com/profile/13149095861584546967noreply@blogger.com2tag:blogger.com,1999:blog-34166407.post-18683666109196814892007-10-10T10:24:00.000-04:002007-10-10T11:42:40.663-04:00

This has nothing whatsoever to do with Migraines, but I'm so angry that I had to post about this. It's still a pain trigger. A pain in the ass. I received this email this morning:Dear friend,My name is Sgt. David Pam, I am an American soldier with Swiss background, serving in the military with the army's 3rd infantry division. With a very desperate need for assistance, I have summed up courage

Abigailhttp://www.blogger.com/profile/13149095861584546967noreply@blogger.com3tag:blogger.com,1999:blog-34166407.post-45786346273848220732007-09-14T18:23:00.001-04:002007-09-14T18:46:46.055-04:00

American Pain Foundation and The HealthCentral Network: Call for Artistic Submissions for Creativity and Pain Exhibit Deadline for Entries is September 20, 2007 The American Pain Foundation (“APF”) and project partner The HealthCentral Network, Inc. (www.HealthCentral.com) is accepting entries for the 2007 APF Pain and Creativity Exhibit. This online exhibit will showcase all contributing

Abigailhttp://www.blogger.com/profile/13149095861584546967noreply@blogger.com0tag:blogger.com,1999:blog-34166407.post-6291002384030070752007-09-14T01:01:00.000-04:002007-09-14T01:32:05.986-04:00

As I followed ERnursey's blog after my last post, I came to like the lady. She took time to answer a couple of comments to her blog and explain the difference between her saying 'migraine' and migraine.All in all, what she has to say is very similar to what genuine Migraineurs say. Here's a quote from one of her entries:People with migraines are on preventative, anti-nausea and abortive meds.

Abigailhttp://www.blogger.com/profile/13149095861584546967noreply@blogger.com0tag:blogger.com,1999:blog-34166407.post-27847919115992086822007-09-08T23:34:00.000-04:002007-09-08T23:55:44.496-04:00

Most Migraineurs avoid the ER like the plague. We want to treat our Migraines at home -- conveniently, while retaining our dignity, and without taking up valuable ER space and time.Another reason is that so many of us have been dismissed as having "just a headache" or even been accused of being a "drug seeker," there just to try to get opioids. We've encountered ER doctors and nurses who have

Abigailhttp://www.blogger.com/profile/13149095861584546967noreply@blogger.com1tag:blogger.com,1999:blog-34166407.post-78550085211102646922007-08-26T16:40:00.000-04:002007-08-26T16:46:15.953-04:00

Migraine and stroke risk, although nothing to sound extreme alarm bells over, is definitely something all Migraineurs should know about. It's in our best interests to talk with our doctors about how we live and what we can do to reduce other risks of stroke.Looking around today, I came across a blog entry by Teri Robert at MyMigraineConnection that features two YouTube videos. These videos were

Abigailhttp://www.blogger.com/profile/13149095861584546967noreply@blogger.com1tag:blogger.com,1999:blog-34166407.post-68050592528274935582007-08-25T12:31:00.000-04:002007-08-25T12:43:30.672-04:00

It's estimated that half of those living with Migraine disease haven't been diagnosed. I know several people whom I really think are among the undiagnosed.Take Sylvia (not her real name) for an example. Sylvia has severe, throbbing "headaches" accompanied by:heightened sensitivity to light (photophobia) and sound (phonophobia),horrid nausea,and mood swings.Sylvia is certain they're not Migraines,

Abigailhttp://www.blogger.com/profile/13149095861584546967noreply@blogger.com0tag:blogger.com,1999:blog-34166407.post-89142474654252170742007-07-11T23:36:00.001-04:002007-07-12T12:52:01.644-04:00

Dear Friends,I would seldom even consider doing something like this, but I've been driven to it. I'm asking that we ALL stop using Wikipedia. You may think I'm exaggerating, but they are setting back Migraine DISEASE advocacy by years in the minds of anyone who takes them seriously.Somewhere along the line, some misguided soul decided that the experts who had worked on the Migraine page and added

Abigailhttp://www.blogger.com/profile/13149095861584546967noreply@blogger.com2tag:blogger.com,1999:blog-34166407.post-60231411204223205042007-07-07T02:11:00.001-04:002007-07-07T02:24:27.408-04:00

It can be really hard to know what to say to someone suffering with a Migraine or headache. You want to be kind, sympathetic, helpful. I would imagine that if you're a professional in the field -- educating, supporting, and advocating for Migraineurs -- you have to walk a fine line. You'd want to do all that being kind, sympathetic, but you might not know how to handle (drum roll, please)... the

Abigailhttp://www.blogger.com/profile/13149095861584546967noreply@blogger.com1tag:blogger.com,1999:blog-34166407.post-73723610447780371142007-06-26T17:57:00.000-04:002007-06-26T18:10:48.462-04:00

Today, I received an email from Dan Marschinke, the producer of MyMigraineConnection.com. Part of it read:"I just wanted to congratulate you and let you know that we’ve selected Abi’s Migrainous Wanderings as one of our Top Site Award Recipients! We’re honoring the ten best Migraine and headache blogs and sites on the Web, as picked by our experts."Especially since I've been watching

Abigailhttp://www.blogger.com/profile/13149095861584546967noreply@blogger.com4tag:blogger.com,1999:blog-34166407.post-5209100225052671302007-06-23T16:09:00.000-04:002007-06-23T16:18:49.822-04:00

A belated happy blogiversary goes to Kerrie at The Daily Headache! The Daily headache has become one of the best headache and Migraine blogs around. Kerrie celebrated The Daily Headache's second "blogiversary" this past week.If you aren't familiar with it, check it out. You'll love it!

Abigailhttp://www.blogger.com/profile/13149095861584546967noreply@blogger.com2tag:blogger.com,1999:blog-34166407.post-77688136073673193092007-06-22T14:16:00.000-04:002007-06-22T17:08:31.482-04:00

Yesterday evening, I came across a post on the MAGNUM guestbook that I'm now told was approved by accident and has now been removed by their Support Advisor, Teri Robert. It was from a chiropractor who claimed, "EVERY single migraine sufferer I've ever cared for has no longer suffered from migraines after, some had 100% relief after just 1 visit." He had included the URL for his Web site. I call

Abigailhttp://www.blogger.com/profile/13149095861584546967noreply@blogger.com7tag:blogger.com,1999:blog-34166407.post-7615198726719822142007-06-13T14:19:00.000-04:002007-06-13T14:36:52.522-04:00

Every Migraineur's dear friend Teri Robert at MyMigraineConnection spent last week in Chicago at the 49th Annual Scientific Meeting of the American Headache Society. Teri attends this conference every year and always returns home with fodder for many articles in which she shares with us what she learned -- written in a way we can actually understand! To me, her articles are always more valuable

Abigailhttp://www.blogger.com/profile/13149095861584546967noreply@blogger.com4tag:blogger.com,1999:blog-34166407.post-19836340692266079832007-03-15T02:10:00.000-04:002007-03-15T02:38:02.465-04:00

I have Google News Alerts set so that I receive emails about news and new blog entries related to Migraine disease. They're generally interesting, and help me learn and stay up-t0-date. There are times, on the other hand, when one of the catches my eye for another reason -- doubting what I'm reading or even the reason someone wrote it in the first place.Case in point, is a Blog Alert I received

Abigailhttp://www.blogger.com/profile/13149095861584546967noreply@blogger.com3tag:blogger.com,1999:blog-34166407.post-17214201515469318532007-03-03T11:16:00.000-05:002007-03-03T11:23:35.913-05:00

UGH! A daily headache or Migraine isn't something I'd wish on anyone. BUT, there is a great blog entitled "The Daily Headache." If you haven't read it, you're missing out on a great blog written informatively and with superb wit and humor.The so-called "Migraine personality" was debunked years ago. Well, at least that's what I thought. Now, some fools in Italy who call themselves doctors are

Abigailhttp://www.blogger.com/profile/13149095861584546967noreply@blogger.com3tag:blogger.com,1999:blog-34166407.post-38396563053513626012007-02-01T13:25:00.000-05:002007-02-01T13:34:09.476-05:00

ARLINGTON, Va., Feb. 1 /PRNewswire-USNewswire/ -- The HealthCentral Network, Inc. today announced that Teri Robert, prominent Migraine patient, author and advocate, will join the MyMigraineConnection.com team as Lead Expert Patient. Robert, who has personally struggled with Migraines, will educate, support, and empower patients through regular articles and blogs on THCN's Migraine site.

Abigailhttp://www.blogger.com/profile/13149095861584546967noreply@blogger.com0tag:blogger.com,1999:blog-34166407.post-24138679588551166622007-01-27T13:36:00.000-05:002007-01-27T15:37:33.070-05:00

It's sad, really. The Wikipedia pages about Migraine disease and various forms of headaches such as tension-type and cluster headaches were, at one time, excellent resources. What they've become is just more flotsam on a sea of questionable Web content.Wikipedia is a good concept -- a sort of online encyclopedia that anyone can edit. And therein lies the problem. Anyone can edit. The "policing"

Abigailhttp://www.blogger.com/profile/13149095861584546967noreply@blogger.com4tag:blogger.com,1999:blog-34166407.post-71722852468768927962007-01-19T14:56:00.000-05:002007-01-19T15:09:11.244-05:00

OK, I'm biased. Virtually everything I know about Migraine disease I learned from Teri Robert. Reading her articles taught me that Migraines are a disease; that I have not only the right, but the responsibility to ask my doctors questions AND get some answers, that I do not have to live with nearly daily Migraines. She's the reason I capitalize the word Migraine. So, I'm biased. Teri is my hero.

Abigailhttp://www.blogger.com/profile/13149095861584546967noreply@blogger.com3tag:blogger.com,1999:blog-34166407.post-39395675389133374072006-12-13T16:46:00.000-05:002006-12-13T17:01:59.506-05:00

What could someone else give you to make your life with headaches or Migraines easier?What gift would you give yourself?These are the questions Teri Robert asked on her site at About.com. They're great questions, and she has some wonderful suggestions.Check it out!Shalom,Abi

Abigailhttp://www.blogger.com/profile/13149095861584546967noreply@blogger.com0tag:blogger.com,1999:blog-34166407.post-45021559890873749002006-11-19T12:17:00.000-05:002007-03-03T00:22:55.057-05:00

People who blog about Migraine disease and speak as if they're an authority offering educational information should do at least a bit of research before blogging. Incorrect information can be highly detrimental, confusing more people than it helps.This morning, I ran across a blog entry entitled, "Migraine headaches come in two varieties." Not only does this person think that Migraine with Aura

Abigailhttp://www.blogger.com/profile/13149095861584546967noreply@blogger.com4tag:blogger.com,1999:blog-34166407.post-85008962577409001612006-11-18T13:23:00.000-05:002006-11-18T13:34:44.063-05:00

A Google News Alert sent me to check out another blogger's entry, "Easy Steps to Become Migraine Headache Free" this afternoon. Groan. Here we go again. Someone else writing that stress is the Big Bad Wolfe and that controlling our DISEASE is easy.According to Javier Fuller, who wrote this little ditty, controlling "Migraine Headaches" is as easy as chiropractic adjustments, biofeedback, dietary

Abigailhttp://www.blogger.com/profile/13149095861584546967noreply@blogger.com0tag:blogger.com,1999:blog-34166407.post-86474341784892700472006-11-12T13:25:00.000-05:002006-11-12T14:08:09.339-05:00

If you're a Migraineur or know someone who is, this is a web site you need to visit and bookmark! There are other organizations for headaches and Migraines, but MAGNUM is the only nonprofit organization devoted specifically to Migraine DISEASE.MAGNUM was founded by Michael John Coleman, who has suffered with this disease since he was a child. The organization has a superlative staff and board of

Abigailhttp://www.blogger.com/profile/13149095861584546967noreply@blogger.com0tag:blogger.com,1999:blog-34166407.post-76352649285039058792006-11-06T22:25:00.000-05:002006-11-06T22:30:13.107-05:00

I used to love Wikipedia. Even when idiots messed up the "articles," someone would come along and fix them, and I always found something interesting and maybe even unusual about it.Wikipedia was such a lofty concept — articles that anyone could contribute to, collaboration in fine form indeed. It seemed to me to be a concept and site that had a brilliant future.The wiki concept is in the process

Abigailhttp://www.blogger.com/profile/13149095861584546967noreply@blogger.com1tag:blogger.com,1999:blog-34166407.post-66971320773165597842006-11-06T18:32:00.000-05:002006-11-06T18:39:08.699-05:00

The Migraine Aura Foundation has a marvelous web site. One of the most fascinating sections there is their section of Migraine Art.If you've never visited this site, please do. You won't be disappointed.Shalom,Abi

Abigailhttp://www.blogger.com/profile/13149095861584546967noreply@blogger.com1tag:blogger.com,1999:blog-34166407.post-44250372945464539462006-10-22T12:44:00.000-04:002006-10-29T01:30:35.699-04:00

In an earlier entry, I explained that, following Teri Robert's lead, I always capitalize Migraine. When I first asked Teri why she capitalizes it, she told me,I capitalize Migraine as an advocacy issue. Too many people still believe that Migraines are "just bad headaches" when, in reality, Migraine is a potentially debilitating genetic neurological disease. By capitalizing Migraine and various

Abigailhttp://www.blogger.com/profile/13149095861584546967noreply@blogger.com4tag:blogger.com,1999:blog-34166407.post-23160761129642103282006-10-15T15:18:00.000-04:002006-10-15T15:24:00.533-04:00

I see that health writer and patient advocate Teri Robert has started a new blog at WeAreAdvocates.com. I love her statment at the top of the page:Optimal health care can be achieved only when patients are educated about their health and patients and physicians work together as treatment partners in an atmosphere of mutual respect.This blog is bound to be great, and I'll enjoy watching it develop

Abigailhttp://www.blogger.com/profile/13149095861584546967noreply@blogger.com0tag:blogger.com,1999:blog-34166407.post-13110543450192441002006-10-01T14:54:00.000-04:002006-10-01T15:13:14.532-04:00

Google has a great feature that allows you to customize a page with news items about whatever key words you select. I love it, but have learned to be skeptical when I come across press releases there.One I read just today is a perfect example, "Modern Treatments for Migraines and Frequent Headaches." The opening paragraph of this release says to me that this press release was most likely issued

Abigailhttp://www.blogger.com/profile/13149095861584546967noreply@blogger.com1tag:blogger.com,1999:blog-34166407.post-57564119422289368152006-10-01T14:38:00.000-04:002006-10-01T14:42:20.659-04:00

Can you remember every important detail of your medical history and all of your medications info when you have a Migraine? I certainly can't, and any doctor who treats us needs to know those things. Put that together with the always possible accident, and we could have a recipe for an enormous problem. That's why I strongly believe that EVERY Migraineur should wear some kind of medical ID.Teri

Abigailhttp://www.blogger.com/profile/13149095861584546967noreply@blogger.com0tag:blogger.com,1999:blog-34166407.post-26758772993982664232006-09-26T13:30:00.000-04:002006-09-26T14:09:12.355-04:00

Dr. XXX and nurse YYY deserve to have a three-day unremitting Migraine. I need them to have one, and one that I know about at that!Last night was pure hell. Between my menstrual period beginning, barometric pressure changes, and forgetting my sunglasses yesterday, I ended up with truly horrendous Migraine attack that began during the evening. Triptans and rescue meds hadn't touched it by

Abigailhttp://www.blogger.com/profile/13149095861584546967noreply@blogger.com3tag:blogger.com,1999:blog-34166407.post-52604441350748931892006-09-23T18:53:00.000-04:002006-09-23T19:27:08.660-04:00

Surfing around today, I came across a blog entry on Teri Robert's blogs, About Headaches and Migraine and Putting Our Heads Together. It was called, as this one is, "The Nourishing Meme." It's so lovely and thought provoking that I want to share it with you.A meme, according to Webster is an idea, behavior, style, or usage that spreads from person to person within a culture." According to

Abigailhttp://www.blogger.com/profile/13149095861584546967noreply@blogger.com0tag:blogger.com,1999:blog-34166407.post-65846630494570427172006-09-12T11:00:00.000-04:002006-09-12T11:13:20.296-04:00

I'd never thought about it this way before, but Migraines are invisible. What got me thinking about this was the About.com newsletter I received in my email this morning. There was a link in it to an article about National Invisible Chronic Illness Awareness Week, which is this week. I'm going to put a snippet of it here and hope you'll follow the link to read the rest. It's really interesting.

Abigailhttp://www.blogger.com/profile/13149095861584546967noreply@blogger.com0tag:blogger.com,1999:blog-34166407.post-3311763945297638772006-09-10T22:35:00.000-04:002006-09-10T22:49:35.186-04:00

Levi Ringer started complaining of headaches in March. His mother took him to the hospital, where he was kept overnight, diagnosed with Migraines, and discharged with Migraine medications. In April, she took him back to the hospital because he was experienceing dizzy spells; and in June, she took him back with a stiff neck.Mrs. Ringer says that the doctors refused to order an imaging study until

Abigailhttp://www.blogger.com/profile/13149095861584546967noreply@blogger.com2tag:blogger.com,1999:blog-34166407.post-15745169350667622282006-09-10T15:05:00.000-04:002006-09-10T15:22:40.415-04:00

Last evening, I sat down to watch a couple of television programs I'd recorded. While watching one of them I encountered the now infamous "Head On, apply it directly to your forehead" commercial. Let's just say it's impossible to fast forward through that commercial quickly enough to suit me. A friend who was watching with me said, "Ya gotta love it! It's so obnoxious that it definitely grabs

Abigailhttp://www.blogger.com/profile/13149095861584546967noreply@blogger.com2tag:blogger.com,1999:blog-34166407.post-51358189678361025602006-09-10T14:37:00.000-04:002006-09-10T15:04:04.808-04:00

There are some issues, even in medicine, on which even the best of the best disagree.Seldom are such issues black and white. There are often points to support both sides. The issue of whether or not stress is a Migraine trigger is one of those.For much of my life, I was told to relax, that stress was bringing on my Migraines. Consulting my Migraine journal, I could never make sense of that

Abigailhttp://www.blogger.com/profile/13149095861584546967noreply@blogger.com2tag:blogger.com,1999:blog-34166407.post-1157905594581336172006-09-10T12:09:00.000-04:002006-09-10T12:58:15.960-04:00

Hello. How are you?My name is Abi, and I'm a Migraineur. Saying that always reminds me of watching television programs or movies with scenes from AA meetings. I actually find that somewhat appropriate since the Serenity Prayer has helped me through more than one long night with a Migraine. BTW, if you're wondering why I capitalize Migraine, it's a habit I picked up from Teri Robert. I noticed

Abigailhttp://www.blogger.com/profile/13149095861584546967noreply@blogger.com1